Hypertrichosis is a rare genetic condition that results in extreme hairiness. It is sometimes referred to as “werewolf syndrome”. Only about 50 cases in history have been documented. There is some speculation that Esau, son of Isaac and twin brother of Jacob, may have had hypertrichosis. He was described in the Old Testament as born covered in red hair, and was referred to as a hairy man by his brother as an adult. Here are several more cases. Petrus Gonzales
445petrus
Petrus Gonzales was born in the Canary Islands around 1556 and taken to be presented to French King Henri II due to his unusual appearance. As a member of the court, he was educated and showed great intelligence. He married and produced five hairy children, three daughters and two sons. A grandchild was also reported with hypertrichosis, and possibly more descendants were affected. Julia Pastrana
445pastrana
Julia Pastrana was born in Mexico in 1834 with hypertrichosis terminalis, meaning her entire body was covered with hair several inches long. She also had a deformed mouth with huge teeth, leading one doctor of the day to declare that she was ‘a hybrid between human and orangutan’. Pastrana was only four and a half feet tall but had a womanly figure. She began a career in freak shows at age 20, and was “managed” by several other handlers before she met exhibitor Theodor Lent, who eventually married her. At venues all over Europe, she was billed as part human, part animal but charmed audiences with her intelligence and grace. Pastrana spoke three languages and sang and danced on stage. At age 26, Pastrana gave birth in Moscow to a son who was also covered with hair, and who died within two days. Julia herself died five days later. Pastrana’s body was traded around for exhibit and is profiled in the post 6 Restless Corpses.
Shaolin Grand Master Tai Djin
445taidjin
Tai Djin was born in Fukien, China in 1849. His parents, not knowing what caused their baby’s hairiness, abandoned him in a forest. Tai was found by a monk who took him to the Shaolin Temple where he was cared for by the Shaolin Masters. Tai grew up to be highly educated, knowing he wouldn’t have much of a life outside the temple. He threw himself into learning martial arts -not just one discipline, but all of them! Tai achieved the title of Grand Master and is known from that point on as Su Kong Tai Djin. He was revered by his many students until (and even after) his death in 1928. Fedor Jeftichew
445jojo
Fedor Jeftichew was billed as Jo-Jo the Dog-Faced Boy. He was born in St. Petersburg, Russia in 1868 to a father, Adrian Jeftichew who also had hypertrichosis. The father and son appeared in sideshows together until P.T. Barnum brought the younger Jeftichew to the US in 1894. The sideshow story was that Jo-Jo was raised in the wild and captured by hunters. Although Fedor could speak three languages, he played his part and barked for the audience. In his time, Jeftichew was one of the highest-paid sideshow attractions in the world. He died in Turkey in 1904. Stephan Bibrowski
445_lionel
Lionel, the Lion-faced Man was born Stephan Bibrowski in Poland in 1891. Rejected by his mother as an “abomination”, he was taken in by a German sideshow exhibitor when he was four years old. Bibrowski was a very intelligent man who spoke five languages and once aspired to become a dentist. His side show act included gymnastic tricks. Bibrowski appeared with Barnum and Bailey’s Circus in the early part of the century, and at Dreamland Circus in Coney Island in the 1920s. He moved to Germany upon retiring from show business, and died of a heart attack in 1932. He was only 40 years old. Percilla Bejano
445percilla
Percilla Lauther Bejano was born in 1911 in Puerto Rico, the only one of five children to be born with excessive hair. Her mother consulted with doctors, but could find no treatment for her. Percilla was adopted by exhibitor Karl L. Lauther after her own father was killed and she toured with the Johnny J. Jones Exposition. She was educated and articulate, and sang and danced in her exhibit. Percilla fell in love with another sideshow exhibit named Emmitt Bejano, who suffered from ichthyosis and was billed as the Alligator-Skinned Man. The two married in 1938 and remained madly in love until Emmitt’s death in 1995. They were billed as “The World’s Strangest Married Couple” when they toured with Ringling Brothers. Percilla and Emmitt appeared in the 1980 film Carny. Percilla was introduced to a new generation of admirers when she appeared clean shaven on The Jerry Springer Show in 1997. Percilla passed away in 2001 at age 89. The Ramos Gomez Brothers
445_danny_and_larry
Larry and Danny Ramos Gomez are brothers born in Mexico, both with hypertrichosis. They were exhibited in a sideshow from infancy. They later joined a circus and learned to perform as magicians, acrobats, and trapeze artists. Their siblings and about 20 members of the extended family are affected by hypertrichosis. Danny’s daughter is affected, but Larry’s son is not. A production company is working on a reality TV show featuring Larry Ramos Gomez, who is divorced, in which he will look for a new love. 445newkids
Times have changed, although there is still no cure for hypertrichosis. Pruthviraj Patil of India and Supatra Sasuphan of Thailand are accepted by their peers despite their hairy appearance, and hope to live normal lives with everyday occupations. Other stories of hairy people include Barbara Urslerin, Shwe-Maong of Burma, and Alice Dougherty the Minnesota Wooly Baby, among others.
Bill Durks understandably had a tough childhood. He was born in Jasper, Alabama on April 13, 1913 with a condition known today as frontonasal dysplasia. During gestation, the two halves of Bill’s face failed to come together completely and uniformly and as a result he was born with deep cleft lip, open palate and a split nose. According to some accounts, Bill was also born with both of his eyes sealed shut with hoods of skin and he had to have them opened surgically as a small child.
Due to his appearance, Bill was denied an education. The schools children would not accept him and his family was simply too poor to afford private schooling. Furthermore, by all accounts, the Durks family was ashamed of their son and didn’t want him attending school anyway. As a result, Bill was a socially awkward and introverted man. To make things even more difficult for poor Bill, his clef lip made him difficult to understand.
Onc day, in his early teens, Bill attended a local fair as a spectator. The showmen running the sideshow instantly invited him to go on tour and Bill left behind his bleak life for a chance at fortune and soon became the ‘Man with Three Eyes’.
In an added bit of showmanship, during exhibits Bill would paint a third eye into the divot between his noses. Likely the fakery was not noticed for the duration of his career because few could stare Bill directly in his face. In a bit of irony, Bill, the man billed as having three eyes, was in reality the man with one eye as he was blind in his right eye.
Bill was quite a successful Marvel and worked with numerous show including Kelly-Sutton Shows, Gooding's Million Dollar Midway, Hall & Christ Shows, James E. Strates Shows and Hubert's Museum making a good living. He was often taken advantage of and exploited due to his meek nature. Bill was also illiterate, which meant he could not read the contracts he signed.
Over time, Bill eventually became quite well liked by his fellow Marvels. Many of them began to look out for his interests. Most notable is the close friendship Bill developed with Melvin ‘The Anatomical Wonder’ Burkhart. Burkhart took Bill under his wing and taught him how to interact with crowds, how to interact with people, gave him confidence and even taught Bill how to read. Bill began to love the sideshow and the crowds. He cherished the idea that while once he was shunned by society, now people were pay for the right to see him. Bill quickly soon became the star of the show and spent the remainer of his career with the Slim Kelly and Whitney Sutton shows. Bill was always grateful for the friendship he found in his fellow performers and his mentor Burkhart.
Burkhart eventually introduced Bill to Mildred the alligator-skinned woman. Mildred was born in 1901 and was a bit older than Bill but friendship quickly turned to love and, despite appearances, the two married. They spent several happy years together as the World's Strangest Married Couple until Mildred passed in June of 1968. Bill was completely heartbroken and soon retired to Gibsonton, Florida where he joined his beloved wife on May 7, 1975.
Bill Durks was a man who began his life hidden from the world by parents who were ashamed of him. He turned to the sideshow and found the love and friendship he lacked his entire life. It was love and friendship he deserved as a Human Marvel and a testament to the perseverance of man.
Esther Parnell was born in Kenly, North Carolina on March 5th, 1926. She was one of six children and while her sister and three of her brothers were born with perfectly average skin, Esther and her brother William were afflicted with ichthyosis.
There are several forms of ichthyosis, a rare skin condition that derives its name from the Greek word for fish, but the siblings were particularly scaly and were quickly compared to the alligators found hunting in the Carolinas. Besides creating extremely dry and cracked skin, serious ichthyosis also impedes hair growth. As a result both siblings were made miserable due to sparse hair. Esther, especially, was devoid of a full head of hair and eyelashes. The hairless and scale-covered siblings furthered the unusual appearance of the siblings and, following their education at St. Mary’s College in Raleigh, the two alligator-skinned marvels began their exhibition career.
William was commonly known as Aloa the Alligator Boy and Esther was known as Alice. Together, they were often billed as ‘The Alligator-Skinned Twins’, despite not being actual twins. In fact, much of their promotion material harkened back to Barnum-like tall tales. According to one of their pamphlets, their appearance was due to their mother being frightened by an alligator while pregnant with ‘the twins’. In another, despite being twins, the pair were of different ages. Sometimes their first names or surnames were altered, sometimes they were orphans and sometimes the pair ‘baffled medical science’ with their condition. Together, the siblings travelled almost exclusively within the United States with West's World Shows, Endy Bros. Shows, Cetlin-Wilson Shows, Royal American Shows and Clyde Beatty's Circus Sideshow.
By all accounts, William was a good man who happened to drink too much. He eventually fell into alcoholism and his addiction shortened his life substantially. He passed away in 1959.
Esther, on the other hand, flourished with her charming smile and enchanting personality fascinating all who met her. She married Thomas Blackmon at the age of twenty-two and would come to be best known as The World’s Strangest Mother in 1928 when she gave birth to her first child. In total, Esther gave birth to a total of six children. All were born healthy and with perfect skin.
Professionally, Esther became a member of the Greater Tampa Showmen's Association and was officially involved in show business for 56 years. In addition to exhibition, she was also featured briefly in two movies. In 1973, Esther appeared opposite Dr. Who’s Tom Barker in ‘The Mutations’, also known as 'The Freakmaker' and later she appeared in 'The Sentinel' in 1977 with fellow marvels Bill Durks and Robert Melvin.
When Esther Blackmon passed away on August 24 in 2003 she left behind six children, 16 grandchildren and nine great-grandchildren.
She passed away only twelve days after her beloved husband.
Lori and George Schappell, born September 18, 1961 in Reading, Pennsylvania, are American entertainers. George Schapell was born Dori Schapell, and was known for several years as Reba Schapell.As conjoined twins, Lori and George have acted in an episode of Nip/Tuck, playing Rose and Raven Rosenburg. They have also appeared in a number of television documentaries about their lives as well as talk shows.
As country singer Reba Schappell, George has performed widely in the United States, and has also performed in Germany and Japan. In 1997, she won the L.A. Music Award for Best New Country Artist. She also sang Fear of Being Alone as the voice-over to the credits of a spoof on conjoined twins, Stuck on You.[1]
Previously, George designed support equipment for people with physical handicaps, including her own specialized wheelchair, and a mobility aid for dogs. She is also a trophy-winning bowler.
Lori acts as George's facilitator. She works in a laundry, arranging her workload around George's singing commitments. Lori says that, as a fan of George's, she pays to attend her concerts, just like all the other fans, simply making herself quiet and "invisible" while her sister is on stage.[2]
On June 21, 2007, Lori and George Schappell, took part in grand opening of "Ripley's Believe It Or Not ! Odditorium" in Times Square in New York. This is the first time they were billed as Lori and George Schapell.[3]
[edit] Lifestyle
Born as Lori and Dori Schappell, the sisters are craniopagus conjoined twins, joined at the head and sharing 30% of their brain matter, but having very different personalities and living, insofar as possible, individual lives. As a mark of individuality, and disliking the fact that their names rhymed, Dori changed her name to Reba. By 2007 she was preferring to be known as George.
While Lori is able-bodied, George has spina bifida which has caused growth retardation of her lower body and severe mobility impairment. The two women are therefore of very different heights. There was no wheel chair that suited George's unique condition, as to move around, she must be raised to her sister's height, to avoid undue strain upon Lori's neck and back. The only thing on wheels that was the right height was a bar stool. Using this as the foundation, George designed the wheelchair that she currently uses. One of the benefits of having a high wheel chair is that, unlike most people in conventional wheelchairs, the user is raised to about the height of a standing adult, which better facilitates normal communication.
Lori and George spent the first twenty-four years of their lives living in an institution in Reading in which the majority of inmates suffered severe intellectual disability. Although neither is intellectually disabled, George's condition required special care. A court decision was made that their parents would be unable to care for them properly and they were removed and institutionalized. In the 1960s there were few hospital institutions for those people who had special needs that were unusual. In order that they might be placed in the institution, they were diagnosed as suffering from intellectual disability. When they reached adulthood, George, with the help of Ginny Thornburgh, wife of a former Governor of Pennsylvania, fought to have this diagnosis overturned and Lori and George were able to go to college.[4]
They live in an apartment, each maintaining their own private space. George has several pets. They respect each other’s privacy in terms of work time, recreation and friendships.
In 2006, George was baptized a member of the Church of Jesus Christ of Latter-day Saints, in Reading, PA. Lori did not join the LDS Church, but has been supportive of her sister's decision.
Robert Wadlow was a pituitary giant, someone who grows enormously due to an overactive pituitary gland. He was born in Alton, Illinois on February 22, 1918, a completely normal baby, 8 ½ pounds. However, by the time he was a year old he weighed twice normal, 44 pounds. By nine years he'd reached 6', 2", by sixteen he hit 7', 10", and weighed nearly 400 pounds. At the time of his death in 1940 he was 8', 11.1" tall and weighed 439 pounds making him the world’s tallest person in history, according to the Guinness Book of Records, surpassing the record previously held by an 8', 4" inch Irishman who died in 1877.
Robert was the first born of Addie and Harold Wadlow, who later had four other children. Despite Robert's size, all of his family members were of normal height and weight. He tried to maintain a normal life as a child. Robert enjoyed collecting stamps and matchbooks, joining the YMCA, and taking up photography. When he joined the Boy Scouts at age13, he became their tallest member at 7' 4". In 1936 Wadlow received a scholarship from Shurtleff College of Alton and planned to become an attorney. He found college life difficult due to his size. Pens and pencils were difficult for him to use. Lab instruments were a nightmare. He quit after one year mostly because he could scarcely walk in icy winter conditions and he had difficulty moving from building to building between classes. His bones were brittle, and a single fall could put him in the hospital.
At the age of 19 he joined the Ringling Brothers Circus and at age 20 he came a goodwill ambassador for the International Shoe Company. In a specially converted automobile Robert and his father made a goodwill tour of the West Coast. The company thereafter gave him complimentary size 37 shoes for which he had been paying $100!
While otherwise remarkably healthy, he did have considerable trouble with his big feet. He had little sensation in his feet and did not feel any chafing until blisters formed. While making an appearance at the National Forest Festival in Manistee, Michigan in July 1940, a fatal infection set in when such a blister formed. On July 4th, doctors had Robert confined to a hotel bed, unable to find suitable accommodations at the local hospital. On July 15th, after emergency surgery and blood transfusions, Robert passed away in his sleep.
His body was brought back to his hometown of Alton for burial two days later. The 1,000- pound casket required twelve pallbearers, assisted by eight other men. It was placed in a 12' long reinforced concrete tomb. Out of respect for Alton's "Gentle Giant," all city businesses closed for the funeral. Over 40,000 people attended the funeral and burial services. Robert's gravestone simply reads "At Rest." A life-size bronze statue of Wadlow was unveiled in 1985 on the grounds of SIUE’s Dental School. Wadlow's grave is in nearby Upper Alton Cemetery.